Do you have locked-in syndrome, or do you know someone else who does? We want to hear from you and are very keen to understand your story. Please do get in touch - it’s really important that we build our network and support channels. Anything you share is done so in the strictest confidence. 


Hearing your journey so far is incredibly important to the charity. The more communication we have from those affected, the more everybody can understand about this, and the more we can raise awareness. 


Please message us through our ‘Contact Us page’ - we’d love to hear from you.